Congenital heart disease (CHD) is a general term to describe more than 40 heart conditions or problems with the heart’s structure that are present at birth.
Every year, 500 to 600 babies are born with congenital heart disease in Ireland. Almost 19,000 people, from babies to adults, live with CHD (Heart Children).
On the next page are links to some useful organisations that can offer support for CHD.
Congenital heart disease (CHD)
Heart Children is the national charity supporting people with congenital heart disease and their families. It works to help people with CHD of all ages to stay well, live confidently and enjoy life to its fullest. All services are funded by public donations and provided free to members.
Children’s Health Ireland, Crumlin (Our Lady’s Hospital for Sick Children, Crumlin)
CHI Crumlin is the national centre for paediatric cardiology and cardiothoracic surgery in Ireland. The hospital’s Children’s Heart Centre diagnoses and treats all aspects of congenital heart and lung disease in children across Ireland. Children up to age 16 years can receive care at Crumlin and at satellite clinics in Limerick, Sligo, Cork, Tallaght and Temple Street (Dublin).
Children’s Heartbeat Trust
Children’s Heartbeat Trust, based in Northern Ireland, has been working since 1984 to provide practical, emotional and financial support to children, young people and their families who are living with heart disease.
Supports and services include:
Youth and family support services
Advocacy to centre the voice of children, young people and their families in all congenital cardiac services