The coronavirus pandemic has changed almost every aspect of our lives. While we must all now stay physically apart, we are not alone.
All our heart support groups have moved to telephone and online support. We have also launched private Facebook group for people with heart failure and other heart conditions and their carers which is moderated by nurses and give you access to expert information and allow you to share your thoughts and concerns with similarly affected people. All groups include home-based exercise videos, advice from nurses, tips on diet and peer to peer support which is vital at this time
Cardiomyopathy is a heart muscle disorder or condition.
Most cardiomyopathies are inherited. There are a number of different types of cardiomyopathy, the most common are:
The Cardiomyopathy Support Group is free of charge and it is for people who are affected by all types of the condition. This includes both adults and children, as well as their families. The Group is run by people who have cardiomyopathy and is supported by the Irish Heart Foundation.
WHAT’S THE AIM AND HOW DO I JOIN?
The Cardiomyopathy Group aims to empower members to live well with their condition by offering information, support, practical advice and opportunities for members to meet or talk to others.
Meetings and more
The support group holds national information meetings, medical conferences, family weekends away (Kids Camp), and issues information bulletins. Committee members are happy to get in touch with families affected by Cardiomyopathy by phone, email or in person to share their experiences. Please note our support group functions on a national basis; we do not have small local groups that you can physically attend.
Membership is free
Membership is free of charge. If you would like to join the group or to connect with members – please email Tracy Egan.
To download the information leaflet from the Cardiomyopathy Support Group here.