Long QT Syndrome Support Group

The coronavirus pandemic has changed almost every aspect of our lives. While we must all now stay physically apart, we are not alone.

Our nurses are available on phone and email support Monday to Friday 9 am to 5 pm. Call 01 6685001 or email support@irishheart.ie

All our heart support groups have moved to telephone and online support. We have also launched private Facebook group for people with heart failure and other heart conditions and their carers which is moderated by nurses and give you access to expert information and allow you to share your thoughts and concerns with similarly affected people.  All groups include home-based exercise videos, advice from nurses, tips on diet and peer to peer support which is vital at this time

We are accepting new members in all of our groups.  If you would like to join, please contact us or call 01 6685001

The Long QT Syndrome (LQTS) Support Group is for adults and children affected by the condition and their families.

The Group is run by people who have LQTS or have family members with LQTS and is supported by the Irish Heart Foundation.

 

Living well with LQTS and the Support Group

LQTS is a heart rhythm disorder or condition. LQTS is usually an inherited condition, affecting adults and children. There are a number of different types of LQTS. Different people, even within the same family, may be affected by LQTS with very different degrees of severity.

The Long QT Syndrome Support Group wishes to empower people and their families to live well with their condition. To to do this, the Support Group provides information, support and practical advice as well as opportunities for members to meet or talk to each other.

 

Meetings, advice and more

The LQTS Support Group holds national information meetings, medical conferences, family weekends away (LQTS Kids Camp) and issues information bulletins. Committee members are happy to get in touch with families affected by LQTS by phone, email or in person to share their experiences. Please note our support group functions on a national basis; we do not have small local groups that you can physically attend.

 

Membership is free

Membership is free of charge. If you would like to join the Support Group or connect with Group members.

There is also a Facebook support page for Long QT Syndrome Ireland here.